new letter to pdoc...

Dr. D#*#*#*#

You commented very casually when I last saw you about my taking the Topamax at bedtime being unusual because it was a stimulant. I don’t remember the rest of the conversation, but what I did was to go home that night and begin a change in my regimen.

This was not good. Within two days I fell into a depression and my sleep pattern became disrupted. Further complicating things I lost my appetite and went for a week eating only one meal a day in the evening time.

If you wonder why I end up making decisions about how to adjust my meds on my own I’d have to say it pretty much comes down to the fact that you do not return my phone calls to discuss my mood swings between my appointments with you. This is why I go from the extremes of wishing to take zero medications (where I felt really good for nearly 6 months) to this use of minimal meds now.

You keep referring to this other model patient that uses Lithium and Wellbutrin. It would be a wonderful world if all bipolars could use the same cocktail. Lithium made me sick (after using it for over 7 years – check my medical records for all the liver biopsies I’ve had). I couldn’t learn to properly regulate the use of the Wellbutrin. It was too much like a feel-good pill that I could just keep taking more of whenever I wanted to “feel good”, which I wanted to do all the time. So I always took the maximum dose. I need something that just works as a one pill fix for me, like the Cymbalta seems to be doing so now.

As I get older, and I’m talking by the week, not by the year, disappointments in friendships and attempts at making progress in establishing career footholds weaken me more noticeably. I don’t recuperate quickly, or completely.

In summary, changing my Topamax for only 3 days took me nearly two full weeks to recover from physically. The depression, well until I start to eat again regularly I don’t know when it will start to recover fully. And now there are new components of the career puzzle coming into place. The Eugene O’Neill Foundation is offering me a volunteer position that I pretty much cannot refuse. This is building a very familiar pattern of me taking on too many things that I cannot hold all together. I need you to help me keep my head together so that I won’t fall apart again. Please.

Daryl
(see daryldarko blog for more info)

Comments

Unknown said…
Where's the daryldarko blog? I didn't know you had another one besides this? Topamax was HORRIBLE for me. I was in a horrible depression, this awful p-doc put me on Topamax (and that was IT!), I couldn't eat (appetite suppresant), and winded up in the psych ward from suicidal depression, and out of work for 6 weeks. That's when I learned...I truly had to find a GOOD pdoc. Your doctor is a jerk to talk about a "model" patient, and I can't take Lithium, either. And...I adjust my own meds too - I think we know our bodies best. (my own opinion)
Daryl Darko said…
You poor dear! Man, these medz ARE dangerous and not for everybody. I stopped taking Lamictal and Wellbutrin for an entire 6 months, and felt great. pdoc then said that if I refused to take anything he felt that if something "bad" happened to me that it would be against his best interest to be resposnsible for me... WTF? so I read about what other people were taking and Topamax didn't sound so bad. I decided how much to take and until I became depressed from not being able to eat (200mg) he then suggested a smaller dose. so now I only take 50mg, which is fine. and now the 20mg of Cymbalta, also my decision.

Our meeting yesterday was more like a talk with a career counselor than a psychiatrist. He is fascinated that I am a writer and wants to know what "I" think about his opinion of movies and books he's seeing and reading... As I walk out the door he says, "So meds are working ok?" As if you'd give me a chance to complain? I swear to god I should report the man.

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